Notes from Meeting 7/ 14.12.09

[thank you stephen & william]

Overall we have to set out scenarios and begin the design process!
we have to look at the three ideas and come to a better and stronger concept for each.. not develop fully.

From the top... (bit rambling but you'll get what they mean if you look at the last post


Universal connection

Inclusive design
cool aesthetics
simplify
plug sort of same

Type of pain relief

how to deal with pain?

what get to brain faster?
rubbing hugging?

sceanerios? how to develop ideas

Hands
frustration

Pure ideas

magnets hand bag
specail magnt conductors - chi locations
limited mobility - inclusive
power - how to stay closed

D90 Skull helmet

impact makes it rigid
support

activate/deactivate

look good
new opportunity
strength
out do the button

zip together magnets

how to put in fabric?

Digitex (fabric brief) RSA
digital fabric

mobility study - most dexterous (does closing stuff really affect them?)
push it - design - new feedback


we need to develop ideas further to make a better judgment.
That's not to say we have to bring all three to the same development stage; we can disregard/dispose as we go along.

Notes from Meeting 5/ 6.12.09

1. Clothing Accessories
Magnets, stretch material and velcro
Given in a pack to a tailor with users clothes for adapting.
Develop instructions and actual accessories

There were other ideas in this area but they all fall into this main concept.

2. Day to Day - Plugs
Simple magnetic adapters for plugs to allow dis/connection.

This 'day to day' task falls into another group of ideas; this being
the most simple and direct.

3. Pain Intervention
A wearable garment that has the ability to administer therapy/ies
when needed.

We were focusing on the hands; using heat and pressure. Following
on, that the same model/concept could be further developed for best fit
other parts of the body. This we feel is our strongest and most relevant to the
brief.

These are the main areas that we have formed ideas around the research.

Pics from Meeting 5/ 6.12.09

interview with stakeholder (best friend of sufferer) 29.11.09

sandra | diagnosed with Rheumatoid Arthritis at age of 9 (juvenile?), now is 25
(used fake name here on blog)

- young.. aware of what's happening in the world in terms of science and research so sees a correlation with ways to decrease symptoms and pain.

- at 22, started a new treatment 'anti TNF' (antibodies against inflamatory..) so feels much better but still had deformed hands and feet.

- but recently underwent surgery to fix that. and what able to run for the first time! and wear new shoes that looked normal.
did the operation privately (save up for it) to have it done between her law degree and her new job (see below). She did not want to wait years for the NHS and the time factor was important. also because her mom (teacher) would be off of work.

- after the surgery. she started talking about her arthritis and was more open about it (more comfortable, and feels better..)

- she remembers that when they were young and went touring in Italy to sing, her friends symptoms of pain would be worse.

- loves music, singing, playing the piano. she adapts the music to her fingers, because she can't reach an octave.
[special piano with special keys?]

- says that she can't do open windows on a damp night

- always had to be careful about weight and diet.. because she can't move for excercise..
no diet seemed to work! according to hannah (the girl i interviewed), at one point her diet was eating rice and maltesers only! :s

- she is not week, but feels embarassed.
wants to feel like she can do it all on her own. "i can carry my bag!"
doesn't like it when people baby her
but hannah now no longer asks her, and automatically carries her bag...
she does it before talking or asking so that it doesnt come up.. and acts normally about it
[role of good friends!]

- at school, she used to type everything

- has a special hand break and gear stick in her car

- currently works in a law firm and worries alot about what they think of her.
slow writing.. "theyre gonna think im not good enough"
"they all look clever and beautiful and in high heels, but i can't"

- at work: know her case - gets special care - special desk & seat - check up on her..

- likes to be integrated with society and be with everyone else. not isolated or in a special place.
not dwelling on it but getting on with things... talking to people..

Notes + Pics from Meeting 4/ 24.11.09

- subtle mechanisms
- equipping individual
- communication. people are insightful!
- innovation/lateral thinking/ disecting/ thinking around the problem
- priorities. mentally active- staying positive
- support - dealing with it - taking each day as it comes - being ready


Q's for patients:
- What is a bad day? How do you get through it. (what gets them down)
- Who supports you?
..

for Tuesday!

sara:
• experience [journey: symptoms, contact with NHS, ongoing..]

stephen:
• daily routine [person with vs. without arthritis]

william:
• life outside [home vs. work vs. transport...]
• spatial qualities [above + perfect environment/weather + climatizing]

mia:
• stakeholders [parents, siblings, friends, coworkers/colleagues, carer, nurse, dr., ]
• physical/body boundaries between stakeholders

make sure you highlight the challenges + joys + needs

Notes from Meeting 2/17.11.09

- copper/bacteria
- air conditioning /vary for actions..

- ask! do you have arthritis? who has? who is out there?
human diary > state of mind
loved ones (stakeholders)
own coping mechanisms
human insights > looking for moments
wishlist

- 14 yr old girl
wheel chair/ taxi/ summer vs winter symptoms/ labeled as disabled and dependent

- showing expressions of love

- mapping journey
categories/ steps/ hospital care/ GP.../

- offering help/ volunteering to get closer inputs

- socio-cultural and particular cases of arthritis?

- weather/climate
how to control a room? how do you climatize?
create|control the environment
perfect country? perfect month? recreate that
example: white, marble, stones, sleeping on floor.....
office vs. house climate
[look at: designing for our future selves - helen hamlyn] centralized