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Patient V // Symptoms started after gave birth
Patient Comments:
- First GP very helpful (but didn't diagnose RA);
- Second GP good but not particularly "clued-up" on RA (saw this as a "old-age" disease);
- GP's didn't have knowledge of medication being prescribed;
- Current GP has a specialist interest in RA (wonderful);
- Well informed about RA (from father's experience);
- Meant to have hydrotherapy (didn't happened);
- Since being prescribed Etanercept has experienced improvements.
Patient IV // Symptoms due the nature of work
Patient Comments:
- No advice offered other than leaflet on Methotrexate;
- Wish more information on diet, life style;
- Own research. Mainly via internet;
- Concern about reliability of some internet resources;
- Not warned that fatigue as part of symptom;
- Discussed the issue with the employer;
- If becomes bad was agreed to start work from home; (happens one time)
- No adjustments have been required at the workspace.
Patient III // Symptoms started after lift a heavy parcel
Patient Comments:
- Good education programme at the hospital;
- Partner able to provide support at home;
- Active exercising (walking, bicycling, etc.);
- Basic information leaflet supplied for drugs.
Patient II // Symptoms started after a traumatic and stressful situation (husband died)
Patient Comments:
- Mother suffer from severe RA;
- Big improvement after only 2 injections of Enbrel;
- Although a lot of damage had already been done to hands, fingers, toes and ankles;
- Able to self-inject after being teach by the district nurse;
- Took a Hydrotherapy course. First at the hospital and after at a fitness centre;
- Still attending the gym;
- Started to visit the local NHS Chiropodist every 6 weeks (because she started to be unable to cut toenails, etc.).
Patient I // Symptoms for 24 years before being diagnose
Patient Comments:
- Happy with the information given by GP and Rheumatologist;
- Get a lot of other data from internet;
- No extra help offered;
- Unaware of other services (like RA nurse);
- Used the NRAS helpline.
